Helping each other
and sharing experiences...
As patient and loved one, you daily are confronted with the process of heart disease and try in your own way to deal with fears, insecurity, sadness and anger. You may feel the need to express and share all these emotions with other people who may not always understand, or at least not fully understand, the issues you are constantly struggling with.
I have always kept it private that I have a heart disease, but since Corona, half of the world knows now that I am in a high risk group... this is quite annoying actually.
My father lived 57 years with a cardiac disorder.
I am afraid I also can't expect to live much older either... can it be true?
My husband and I want to have children, but we recently found out that I have an inherited heart condition: is it still wise to get pregnant?
Since the diagnosis of Brugada syndrome, I have felt terribly anxious and I'm afraid to tell anyone.
I don't dare to exert myself and I am so tired:
is sport good for me?
I have an inherited heart muscle disease...
does it still make sense to pursue a career?
A listening ear
Do you also want to share your experience with other fellow-sufferers? This is always possible, and also anonymously if you wish. Please contact us and/or send us a message via the online contact form.
Also take a look on Facebook where you can join our private fan page (mostly in Dutch). You can get in touch with other people who are affected by the same condition and who can have the same matters.