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Marion van Sinttruije
Patient Representative

Marion van Sinttruije

Marion is a retired Business Economist and also a hypertrophic cardiomyopathy (HCM) patient. After an accidental diagnosis on an electrocardiogram, she lived with this disease indifferently for years without knowing that it had wrong consequences and without seeking out a doctor with knowledge of the condition. When she found out, it was too late. And that is what drives her: what happened to her should not happen to others, due to lack of knowledge among patients and cardiologists.

Foundation Position:

Treasurer

Ancillary Positions:

Treasurer of the Bach Cantorij Baarn Foundation, member of the Patient Advisory Council of Cytokinetics and member of the Steering Committee Sequoia Clinical Trial of Cytokinetics

Experience:

35+ Year

Email:

contact

Location:

Zwolle, the Netherlands
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